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Stephen's local health board has no record of him, despite his diagnosis of Facioscapulohumeral muscular dystrophy (FSHD) 22 years ago. The only specialist he sees is a neurologist 90 miles away from his home in Dumfries - a distance too far for him to travel, so he has yearly appointment over the phone. ☎️ "The lack of knowledge in ...
521 viewsNov 21, 2024
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